Expert Exposure

Welcome

to the EDS Joint Effort

A new collaborative community collective for EDS is here! EDS S.H.A.R.E.

is where patients, providers, and advocates come together in a joint effort to build a collection of the best resources on hypermobility, EDS, and its common comorbidities.

How to get diagnosed?

Short guides written by an EDS expert doctor to share with your doctors, “Diagnosing Joint Hypermobility for Non-Specialists“, “What Your Specialists Need to Know” and “Medical Care of Hypermobile Patients

One page guides written by expert doctors courtesy of Bobby Jones CSF on EDS, dysautonomia, or POTS, and Chiari malformation.

Suggested Resources

Best Apps

Here’s a list of some of the best apps to use when you have EDS/HSD or other conditions like POTS, MCAS or other health and chronic conditions.

Ebooks

Download helpful patient-focused resources and ebooks, plus an article with audio on how to locate credible medical info online, Calling Dr. Google is Not a Good Idea.

Accomodations

Here’s information on getting work accommodations if you are employed. Or if you need help for the students and kids with EDS in your life.

Document It

Tracking document for EDS symptoms and other templates to track medical data to aid in preparation for doctor appointments, monitor progress, detect patterns, and gather data when you’re forced to research your own illness.

Access the EDS Living Library: EDS 411

resource

Sleep problems in EDS and HSD - The Ehlers Danlos Society

3/15/2025 2:18:44
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product

Amazon.com: The Grip Jar Opener | Original Under Cabinet Jar Lid

3/15/2025 2:15:25
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news

RFK Jr. is wrong in saying vaccines cause autism. Here's the science

3/14/2025 23:06:13
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news

What Social Security Shake-Up Could Mean For People With Disabilities - Disability Scoop

3/14/2025 23:04:55
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book

You Are Not Your Pain: Burch, Vidyamala: 9781250052674: Amazon.com: Books

3/14/2025 2:34:01
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podcast

Dr. Michael Ruscio on SIBO and gut health as drivers of MCAS: Mast Cell Matters with Dr. Tania Dempsey

3/14/2025 2:04:29
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research

Posterior spinal fusion in patients with Ehlers–Danlos syndrome: a report of six cases - PMC (overmedicalization slant too many surgeries)

3/13/2025 3:43:57
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The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.