Get the No-Fail EDS Doctor Appointment Toolkit

Expert Exposure

Dr. Boon Lim on why EDS/Joint Hypermobility can lead to hypervigilance, POTS and immune dysfunction
EDS Empower Hour on winning your disability claim with Dr. Eric Singman and insurance appeals expert

Welcome

to the EDS Joint Effort

How to get diagnosed?

EDS books
POTS books
MCAS books
Chiari books

Suggested Resources

Best Apps

Ebooks

Accomodations

Document It

Subscribe for FREE guides

Getting a Diagnosis

Free download

Managing Boom & Bust Cycles

Free download

Prep for Surgery

Free download

Our Sponsors

Access the EDS Living Library: EDS 411

research

Long-term high-dose immunoglobulin successfully treats Long COVID patients with pulmonary, neurologic, and cardiologic symptoms - PMC

4/28/2025 8:10:22
GO
resource

Hereditary Connective Tissue Disorders | University of Miami Health System

4/28/2025 1:33:01
GO
product

Self Care Tasks for Adults – Mighty Bright

4/28/2025 1:24:01
GO
resource

Financial Assistance For Patients With Rare Diseases | NORD

4/28/2025 1:00:37
GO
research

Example of Intrafamilial Clinical Polymorphism in a Family with Osteogenesis Imperfecta

4/28/2025 0:58:35
GO
research

Intestinal Failure in Pediatric Vascular Ehlers–Danlos Syndrome: A Case Series and Literature Review

4/28/2025 0:58:25
GO
article

Pros And Cons Of 'Zebra Striping' Method For Alcohol | HuffPost Life

4/27/2025 3:39:32
GO
blog

The Dysautonomia Dispatch | The blog of Dysautonomia International | Page 8

4/27/2025 3:32:01
GO

Stop searching!

Get information sent directly to your inbox!

Get involved in the movement to help find answers faster through community sharing. #Sharingiscaring

The EDS Joint Effort is the definitive platform for all things Ehlers-Danlos Syndrome (EDS) and related conditions. This expansive repository offers an array of resources, from the latest research to practical guides, all easily searchable living library through our intuitive companion tool. Designed by patients for patients, with contributions from expert providers, and patient advocates, Joint Effort facilitates a seamless exchange of knowledge and support. By connecting insights and empowering our community, we enhance understanding and drive advocacy. We believe through collaboration and sharing information is how we will get through this, together.

Follow Us

#Support Us

Quick Contact

    The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.

    Copyright © 2025 EDS Joint Effort. All rights reserved.