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EDS is not a TikTok disease or a fad. It’s a real connective tissue disorder that requires persistence to manage past the gaslighters and the non-believers, even if it’s your loved ones. We know its not ‘trendy to be bendy,’ but to stay up-to-date, here are a few of the latest articles, updates on medical research, and other crafted collaborative resources going on lately:

Pain Shouldn’t Be Rated on a Scale of Zero to 10 — Pain News Network
article

Genetic testing for rare types of EDS
article

In new study, parents share challenges of raising hEDS children
article

New Study Links Shingles to Cognitive Decline
article

Understanding Chronic Elbow Pain and the Role of the Rotator Cuff
blog

I Got a “Medi-Pedi”—Here’s What Happened | The Healthy
blog

Kinesiology tape provides relief from my plantar fasciitis pain
blog

Excerpt: Auditory Processing Disorders on HEDS
book

U.S. regulation of health data, AI to get a boost under HHS revamp
news

Significance of Conversation between Mast Cells and Nerves – PMC
research

Neurology and Connective Tissue | Frontiers Research Topic
research

Dextrose Prolotherapy for the Treatment of Chronic Shoulder Pain in Patients With Joint Hypermobility: A Case Series – Nathan Michalak, Dylan Banks, Luke Kane, Jason Siefferman, 2024
research

Engaging with Insurers: Appealing a Denial – Education Resource Library
resource

Dislocation/Subluxation Management – The Ehlers Danlos Society
resource

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    The EDS Joint Effort is the definitive platform for all things Ehlers-Danlos Syndrome (EDS) and related conditions. This expansive repository offers an array of resources, from the latest research to practical guides, all easily searchable living library through our intuitive companion tool. Designed by patients for patients, with contributions from expert providers, and patient advocates, Joint Effort facilitates a seamless exchange of knowledge and support. By connecting insights and empowering our community, we enhance understanding and drive advocacy. We believe through collaboration and sharing information is how we will get through this, together.

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