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Struggling to stay current on EDS updates?

For the absolute latest on what's trending in the Ehlers-Danlos syndrome (EDS) patient and provider community,
we've got an APP for that! Yes, seriously - we do. Go now to see all the latest news, medical research, tips and products to check out. It's sorted with the newest entries listed at the top, plus its searchable by keyword and category.
 

A must-try tool for anyone looking for EDS info!


The Top Ten Why You Should Try EDS411


Here's a few reasons why it's worth a try to look for credible medical information, vetted by an advisory board of fellow EDS patients sharing what's working for them.

The EDS411 Living Library is...

  1. Collaborative: Content sourced from a diverse range of voices within the EDS community, including patients, expert providers, nonprofits, and advocates, creates a collaborative and inclusive platform.
  2. Comprehensive: By pulling together insights and resources from multiple sources, the service offers a comprehensive view of managing EDS, covering a wide range of topics and perspectives.
  3. Authentic: Content curated directly from the EDS community reflects real-life experiences, challenges, and successes, providing authentic and relatable insights for users.
  4. Credible: Expert contributions from healthcare providers, nonprofits, and advocates ensure that the content is credible, trustworthy, and evidence-based, enhancing its value to users.
  5. Empowering: By amplifying the voices of patients, experts, and advocates, the service empowers individuals living with EDS to take control of their health and well-being, fostering a sense of empowerment and self-advocacy.
  6. Inclusive: By including perspectives from various stakeholders within the EDS community, the service ensures that all voices are heard and represented, creating an inclusive and supportive environment for users.
  7. Dynamic: With content continuously curated and updated from a variety of sources, the service remains dynamic and responsive to the evolving needs and challenges of the EDS community.
  8. Informative: The wealth of insights, resources, and expertise available through the service makes it highly informative, providing users with the knowledge and tools they need to navigate their EDS journey more effectively.
  9. Supportive: By offering a platform for sharing experiences, finding support, and accessing resources, the service creates a supportive community where individuals with EDS can connect, learn, and grow together.
  10. Transformational: Ultimately, the service has the potential to be transformational for individuals living with EDS, offering them the support, information, and empowerment they need to improve their quality of life and thrive despite the challenges of their condition.


See what's there for you at app.eds411.com.

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    The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.