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EDS Joint Effort - Join the Connective Circle

The Connective Circle: Find your tribe. Find your power. Get the easy button for EDS life.

Stop the searching, dial down the overwhelm and start living with the Connective Circle—your direct line to expert advice, a supportive, validating community, and many of the tools, tips, tricks and resources you need to manage your EDS life. No more endless searches, just the answers you need, right when you need them. Imagine having the support and expert insights you need to manage EDS, all in one place. The Connective Circle gives you access to curated resources, plus a safe community of like-minded individuals off social media, freeing you from endless online doomscrolling. It’s about simplifying your journey, staying informed, and finding peace of mind, eright at your fingertips.

Content for the EDS chronic illness community designed to…
Elevate, Educate, and Empower

Included in Membership

  • Collection of carefully curated content in various media and learning formats (audio, print/digital, video) and a regular e-newsletter with highlights of the latest updates
  • Connection to a community of like-minded people within our private forum with no ads or commentary
  • Companion App to help you find answers faster and stay on top of the latest medical news and research publications
  • Courses developed by fellow patients to guide your diagnostic journey, build resilience and develop chronic illness coping skills
  • Coaching for group workshops plus also available (for extra hourly fees for 1:1 private sessions) with providers, patient advocates and mental health leaders to find resources, doctors, treatment and more


Your Essential One-Stop Resource for EDS Insights and Community

Why the Connective Club is Your Ultimate Resource for Chronic Care

  • Be Instantly Connected to Expert Insights
    • Say Goodbye to Overwhelming Searches: The internet is full of information—some of it helpful, much of it not. With the Connective Club, you don’t need to sift through endless articles, forums, and dubious advice. We curate the latest and most relevant EDS insights from trusted experts, vetted by an advisory board of medical providers and patient advocates, then deliver them straight to you. Whether it’s groundbreaking research, practical tips for daily management, or new treatment options, you’ll have what you need without the hassle.

  • Join a Supportive Community of Like-Minded Individuals
    • You’re Not Alone: Living with EDS can feel isolating, but the Connective Club brings you into a validating, supportive community. Our exclusive forum is a place where members can connect, share stories, ask questions, and provide support to one another – all away from typical social media channels requiring public sharing of private health information and unwanted commentary. This is more than just a group—it’s a lifeline of people who truly understand what you’re going through. We get it.
    • Build Lasting Relationships: Forge connections with others who share your experiences. The friendships and support systems you build in the Connective Club will be invaluable as you navigate the challenges of EDS. Some of my closest zebra pals are people from across the globe I’ve never met in person.

  • Experience the Freedom to Stop Searching Online for Solutions
    • End the Stress of Self-Diagnosis or Getting a DIY Doctorate: We know how stressful it is to be constantly searching for answers online. The Connective Club frees you from that burden by delivering targeted, trustworthy information directly to your phone. No more guessing or worrying if you’ve found the right answers—everything you need is provided by experts and tailored to your specific situation.

  • Stay Informed and Empowered with Insights Always on Your Phone
    • Your Health Toolkit, Always with You: Life with EDS can be unpredictable. That’s why the Connective Club ensures you’re never more than a tap away from the resources you need. Whether you’re at home, at a doctor’s appointment, or on the go, your phone becomes a powerful tool for managing your health. Personalize your search, save favorites and tips that help you stay ahead of your condition, and easily share them with providers. Plus e-newsletters delivered straight to you.
    • Real-Time Insights: Receive alerts and notifications about new research, coping strategies, and community discussions that are relevant to your needs. You’ll never miss an important update or tip that could make a difference in your daily life.

What You Get as a Connect Circle Member

  • Curated Expert Content:
    • Access a library of articles, videos, and guides created by several EDS specialists and patient advocates. From the latest research breakthroughs to practical advice on symptom management, you’ll always have access to the best information available. The types of content available include ebooks, video shorts from doctor webinars, planners, templates, patient guides and deep dives on subjects you need to know and growing.

  • Exclusive Community Forum Inclusion and Non-Moderated Access:
    • Engage with a private, supportive community of EDS patients and caregivers outside of social media and online support groups where privacy and credibility can be a concern. Share your experiences, seek advice, and offer support in a space where everyone understands the unique challenges of living with EDS.

  • Timely News Updates and Medical Research Alerts:
    • Stay informed with updates that are directly relevant to your health. Whether it’s a new coping strategy, a treatment option, or a community event, you’ll receive timely information tailored to your needs.

  • Expert-Led Webinars and Events:
    • Participate in live and watch pre-recorded webinars featuring renowned EDS experts. These events are designed to give you actionable insights and the opportunity to ask questions directly to the specialists. Plus, enjoy access to recorded sessions for anytime learning.

  • Peace of Mind:
    • The ConnectIVE Club isn’t just about information—it’s about peace of mind. Knowing you have a reliable, expert-driven source of information and a supportive community to turn to can reduce the anxiety and uncertainty that often accompany EDS.

Who Should Join the Connective Circle?

  • EDS Patients: If you’re tired of feeling overwhelmed by the complexities of EDS, the Connect Club offers a simplified, reliable source of information and support.
  • Caregivers: Whether you’re a parent, partner, or friend of someone with EDS, the Connect Club equips you with the knowledge and tools you need to provide the best possible care.
  • Healthcare Providers: Stay connected to the latest in EDS research and management strategies. Use the Connect Club as a resource to enhance your practice and better serve your patients.

Join the Connective Circle today! You are more than worth it! You deserve it!

Don’t let EDS control your life—take control with the Connective Club. For just a few dollars a month, you can access a world of insights, support, and resources that will empower you to live your best life with EDS.

Sign up now and start experiencing the benefits of connection, community, and expert care, right at your fingertips.

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    The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.