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Welcome to EDS Joint Effort, your comprehensive resource for education and advocacy on Ehlers-Danlos Syndromes (EDS) and related conditions. Our video library is curated to empower patients, caregivers, and healthcare professionals with the most relevant and insightful information available.

  1. YouTube compilation: Explore our dynamic collection of recent YouTube videos featuring contributions from major EDS nonprofits and influential voices in the community. These videos provide a broad spectrum of perspectives and updates, from personal stories and coping strategies to advances in medical research and advocacy efforts.
  2. DocToks: Dive into our ‘DocToks’ series for concise, powerful snippets extracted from extensive expert webinars. These short videos distill critical information into digestible bits, allowing for quick learning and easy sharing of essential insights and medical advice related to EDS management and treatment.

Browse our diverse video offerings to enhance your understanding of EDS and connect with the wider community through shared knowledge and experiences.

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    The EDS Joint Effort is the definitive platform for all things Ehlers-Danlos Syndrome (EDS) and related conditions. This expansive repository offers an array of resources, from the latest research to practical guides, all easily searchable living library through our intuitive companion tool. Designed by patients for patients, with contributions from expert providers, and patient advocates, Joint Effort facilitates a seamless exchange of knowledge and support. By connecting insights and empowering our community, we enhance understanding and drive advocacy. We believe through collaboration and sharing information is how we will get through this, together.

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      The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.

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