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There are several advisor members that make the Joint Effort hum. To reach us, please email us at or complete the quick contact form on our home page. Please give us time to respond as we all have multiple chronic illness and can have good and bad days (or even longer) as you likely understand. We appreciate your patience and compassion for our volunteer efforts.

EDS Society Free Urgent Helpline

  • If you need immediate assistance for an urgent EDS-related issue, try the EDS Society’s Help Line by calling 248-716-8336 and leave a message and an advisor will call you back within 48 hours. More information: https://www.ehlers-danlos.com/eds-helpline/

Pain Management Free Support Groups

  • Daily Support Groups for Pain: If you need some emotional support to get through a painful flare, The U.S. Pain Foundation’s Pain Connection program offers a daily online support group for people with chronic pain called the Daily Chronic Pain Support Group. The group meets Monday through Friday, most Saturdays, and most Sundays from 10–11 AM ET via Zoom. A U.S. Pain-trained support group leader facilitates the group. Register here.
  • Monthly Mindful Meditation Group for Chronic Pain: If you would like to join the Mindfulness for Chronic Pain monthly support group by registering here that meets on the second Tuesday of each month led by others with EDS pain. Ot watch this meditation video for a quick relaxing session. For medical research from Mayo Clinic on the evidence of how mindfulness practices can be a method to reduce a person’s pain.

 

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    The EDS Joint Effort is the definitive platform for all things Ehlers-Danlos Syndrome (EDS) and related conditions. This expansive repository offers an array of resources, from the latest research to practical guides, all easily searchable living library through our intuitive companion tool. Designed by patients for patients, with contributions from expert providers, and patient advocates, Joint Effort facilitates a seamless exchange of knowledge and support. By connecting insights and empowering our community, we enhance understanding and drive advocacy. We believe through collaboration and sharing information is how we will get through this, together.

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