EDS in Video

Welcome to EDS Joint Effort, your comprehensive resource for education and advocacy on Ehlers-Danlos Syndromes (EDS) and related conditions. Our video library is curated to empower patients, caregivers, and healthcare professionals with the most relevant and insightful information available.

YouTube compilation: Explore our dynamic collection of recent YouTube videos featuring contributions from major EDS nonprofits and influential voices in the community. These videos provide a broad spectrum of perspectives and updates, from personal stories and coping strategies to advances in medical research and advocacy efforts.
DocToks: Dive into our ‘DocToks’ series for concise, powerful snippets extracted from extensive expert webinars. These short videos distill critical information into digestible bits, allowing for quick learning and easy sharing of essential insights and medical advice related to EDS management and treatment.

Browse our diverse video offerings to enhance your understanding of EDS and connect with the wider community through shared knowledge and experiences.

Is getting a formal Ehlers-Danlos Syndrome (EDS) diagnosis always the best choice?

Mar 27, 2025 Channel Video

Signs of Tethered Cord You Shouldn’t Ignore with Dr. Petra Klinge (Ep 137)

Mar 20, 2025 Individual Video

Hormonal Therapies, Testosterone, and Regaining Libido - from the Bendy Bodies Podcast Ep.130

Mar 16, 2025 Individual Video

Thank you Australia! Relive the 2025 Global Learning Conference

Mar 12, 2025 Channel Video

CCI: clinical diagnosis, radiological metrics, treatment and outcomes - Dr. Fraser C. Henderson, Sr.

Mar 12, 2025 Individual Video

EDS Empower Hour: Guest Dr. Akilah Cadet

Mar 5, 2025 Individual Video

EDS Empower Hour: Guest Dr. Tania Dempsey

Feb 20, 2025 Individual Video

Making a difference for EDS and HSD — Thank you 2024!

Dec 18, 2024 Channel Video

Research Update: Tracking Blood Flow to the Head in Dysautonomia

Dec 17, 2024 Channel Video

Research Update: Long Term POTS Outcomes

Nov 27, 2024 Channel Video

EDS Empower Hour - Jonathan Parr, Parr PT

Nov 18, 2024 Individual Video

Equitable Care: Empowering Marginalized Voices in EDS and HSD

Nov 16, 2024 Channel Video

EDS Empower Hour: Dr. Golder wilson on EDS Genetics & Testing

Oct 29, 2024 Individual Video

The Ehlers-Danlos Society 2024 Global Learning Conference

Sep 25, 2024 Channel Video

Dysautonomia Awareness Month: How to Make Noise for Turquoise in October

Sep 9, 2024 Channel Video

Hyperventilation in POTS: What Causes It and How Can We Treat It?

Aug 21, 2024 Channel Video

Celebrating 5 Years of EDS ECHO

Jul 20, 2024 Channel Video

POTS Research Update and Q&A with Dr. Alexis Cutchins

May 28, 2024 Channel Video

EDS Empower Hour: Q&A with PTs on UCI & Craniocervical Instability Guide for Patients

Mar 30, 2023 Individual Video

EDS Empower Hour: Special Disability Discussion with Doctors & Lawyers

Oct 24, 2022 Individual Video

The information provided by EDS S.H.A.R.E. and EDS Joint Effort is not medical advice. It is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding any medical condition. EDS Joint Effort, its producers, and its contents are not liable for any actions taken based on the information provided, and all users agree to hold harmless EDS Joint Effort and all products, producers from any claims arising from the use of the information provided. This information is not designed to replace a physician’s independent judgment about the appropriateness or risks for a given patient. Always consult your doctor about your medical conditions. EDS S.H.A.R.E. does not provide medical advice, diagnosis or treatment. Use of the site is conditional upon your acceptance of our Terms of Use and Privacy Policy as stated.

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