Published Works

Papers & Articles Published by Our Media as Medicine Team

Articles 

Research News: Could a Blood Test for hEDS & HSD Be Possible?

Beyond Dr. Google: How to Find Credible Medical Insights Online

Signs You’re Stuck: Four Faces of a Dysregulated Autonomic Nervous System (ANS)

The Six Steps of Proper Pacing

Understanding the EDS Pain Maze

EDS Back to School Special – Prep for K-12, College & Accommodations

Battery Life Over Spoons: A More Intuitive Approach to Chronic Illness Energy

The 7-Step Recipe for EDS Caregivers: Tips for Helping Patients

Got the Barometric Blues? Why Weather Makes You Feel Bad

Gut Check: Gluten Intolerance, Celiac Disease, or Mast Cell Reaction?

10 Tips for Finding an Ehlers-Danlos Patient Advocate

How to Hug A Zebra: A Guide to Supporting Someone You Love with EDS

After Your Screws Come Loose

Turning Your Pain into Purpose

How I Lost My Identity with Chronic Illness and Found the Real Me

Self-Care Habits to Practice Daily

The Sisyphus Effect

The Roar of a Strong Zebra Community

Wean Yourself OFF Being a Workaholic


Patient Guides

Surgery Prep: Meeting Your EDS Hospital Stay Needs

Identifying Early Signs of Hypermobility in Youth

POTS, EDS, and the Scorching Sun: Heat Intolerance & Your Summer Survival Guide

It’s Worth a Shot: Prolotherapy, PRP & Regenerative Therapy – A Medical Overview for Curious EDS Patients

New Cervical Spine Instability Publication: The Authors Explain Their Findings

Unravelling Tethered Cord (Simplified version) or expanded version below

Tethered Cord in EDS: A Patient Guide to Symptoms, Diagnostics, Treatments, and Risks (Expanded version reviewed by EDS        neurosurgeon Dr Patel)

Decoding Medical Deductions: A Chronic Illness Patient’s Guide to Navigating Healthcare-Related Expenses and Taxes

Bend, But Don’t Break the Bank: Financial Resources for EDS Patients

Know Your Love Language? Learn to Speak it Well Despite Chronic Illness

Basic Emergency Care Planning for EDS Patients

Surviving the Rollercoaster of EDS and Chronic Fatigue: Tips and Tricks for Managing the Boom-and-Bust Cycle


Features


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Seasonal & Gift Guides


Templates & Tools


Special Edition May EDS Awareness Content


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    The EDS Joint Effort is the definitive platform for all things Ehlers-Danlos Syndrome (EDS) and related conditions. This expansive repository offers an array of resources, from the latest research to practical guides, all easily searchable living library through our intuitive companion tool. Designed by patients for patients, with contributions from expert providers, and patient advocates, Joint Effort facilitates a seamless exchange of knowledge and support. By connecting insights and empowering our community, we enhance understanding and drive advocacy. We believe through collaboration and sharing information is how we will get through this, together.

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