We’re collectively creating a carefully curated hub as a comprehensive resource repository with a growing living library. EDS Joint Effort is a platform where insights are shared collaboratively where no one party has power to restrict knowledge, science and medicine from moving forward. It’s a place where questions find credible answers, and no one feels alone in their search for information while the medical system lags and the patient population grows of people with issues with their connective tissues.

Here, caregivers and patients alike can tap into a wealth of resources at their fingertips through our innovative companion simple search app of an ever-growing living library. This tool makes it easier than ever for patients and their caregivers to find relevant information and support, reducing the often-overwhelming challenge of navigating EDS.

 

It just shouldn’t be this hard-to-find answers, so we’re trying to change that. Together.

 

Join us at EDS Joint Effort, where together, we work to demystify the complexities of EDS, offering hope and help through shared knowledge and community support. Let’s find answers faster and build a stronger, more informed community of patients, doctors and advocates who work collaboratively to solve this underrecognized disorder of Ehlers-Danlos syndrome. The scientist researchers at the MUSC Norris Lab studying hypermobile EDS where Dr. Chip Norris says it’s “the most common disorder you’ve never heard of.” Learn more about what the Norris Lab is sharing for EDS resources to research to change the landscape. We support their efforts with fundraising, volunteering and community support.

Add to the Repository at EDS411 Living Library
Anyone can submit a recommendation article or other site that’s been helpful for you to add to the growing library of insights. All entries will be vetted for their accuracy and credibility to be considered for addition.

Tips to Get Involved

• Submit your ideas, resources and news that led you to answers.
  To stay in-the-know, subscribe to our monthly news digest.

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Like what we’re doing? We need your help to keep researching, curating, and sharing the latest on joint hypermobility and similar disorders, including hypermobile EDS and its common comorbidities such as dysautonomia or POTS, mast cell disorders, and so on. We appreciate any donations to our Patreon account to better support the operating costs and to expand features and services.

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