Frontiers | Assessment of a novel Ehlers-Danlos syndromes disability index

Disability
Updated on April 19, 2024

Frontiers | Assessment of a novel Ehlers-Danlos syndromes disability index

Finally, a study looking at EDS and impact on activities of daily living and disability.

“The Ehlers-Danlos syndromes (EDS) are a group of inherited connective tissue disorders characterized by disruptions in collagen synthesis and processing. These disorders lead to various symptoms, including hypermobility, musculoskeletal conditions, and chronic pain that can significantly limit patients’ daily living. In the absence of a curative treatment, an EDS specific disability index that tracks changes in patient-reported outcomes can facilitate the investigation of new treatment options and enhance the quality of life for EDS patients…”

Read the report.

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